Didn't See That Coming (or Hear It)

I spent several hours in Chicago yesterday at the Chicago Dizziness & Hearing Center. Dr Hain has been my doctor since 2008, when I first went to him with ringing in my ears and some mild hearing loss. I last went to him in 2013, and wrote about that too.

For newer readers of my blog, you may not realize that I am losing my hearing. I was diagnosed with autoimmune inner ear disease in 2008. I also have tinnitus (a constant, loud symphony of buzzing, humming and some indescribable sounds). Lately, I have had some dizzy spells so violent that I can't remain upright. I figured it was time to touch base with the doctor again. I have been focusing on the more pressing health issues, so this issue tends to take a backseat. Plus, I already know he recommended hearing aids last time, but they aren't cheap, and our insurance coverage for them is subpar.

I had 4 tests done, and then met with the doctor to discuss the results. As expected, my hearing has gotten worse. They are pushing a little harder for me to at least try some hearing aids. Hearing aids will definitely help me hear better, and can help with tuning out the tinnitus too. We will likely get those next year when we are able, when we replenish our medical fund. (I am one expensive disabled wife!)

The unexpected part of my trip yesterday was that one of the test results indicates that I have a small hole in one of the tiny bones in my inner ear. This is called "Superior Semicircular Canal Dehiscence" (SSCD), and of course, it is a rare disease. The test was abnormal enough that the doctor didn't feel like we needed a CT scan to confirm, since I have been through enough. Dr Hain explained that when it gets bad enough, surgery will be necessary. It may take 2 years or 10 years, but it will get worse. Surgery involves seeing a specialist at John Hopkins Medical Center, and drilling into my skull, so let's hope that it takes many years to get that bad. He says I will know it is time for the surgery when I can hear my eyes move back and forth, and it will sound so loud it will drive me crazy (something else to look forward to).

The hole is in one of the semicircular ducts. Both ears are affected.

I have such a great group of prayer warriors who are faithfully praying for me, so I wanted to update you, and ask for continued prayers. I have been listening to the MercyMe  song "Even If" on repeat the last few days. You should have a listen! God is able, and I know He can take this all away, but even if He doesn't, my hope is in Christ alone, and it is well with my soul. 💜

~Until Next Time
Shari