Friday, July 3, 2020

Shattered Comfort

What can I say about the start of 2020 that you haven't already been made aware? Global pandemic, protests, riots, and SO much political bickering it has, quite frankly, become depressing to be on social media at all. Who could have ever predicted that asking to wear a mask would become a political divide? I am not a theologian, politician, or historian. I am a suburban, white, Christian (reformed), woman with a disability, who feels a bit like giving up. What that means exactly, I haven't quite figured out, but what was once my comfortable little corner of the world, now seems disquieted.

Racism has been the topic most recently dividing my social media newsfeed into an "us" and "them." There seems to be no end to those divisive words thrown about on any given topic. I have just been shook from my comfortable suburban life these past few months, which is a good thing. I have said before that my prayer, my desire, is that God might show me areas in my life where my thinking has been wrong. That I might never get too "comfortable" thinking I have it all figured out. I pray He would reveal to me those hard to see personal sins and my lack of concern and compassion. Give wisdom in areas of ignorance, and grace to change wrong beliefs. Lately, I have prayed for forgiveness in turning a blind eye. So easy to get wrapped up in ourselves, our family, our problems, and forget there are others.

I am sure we all have our favorite spot to sit and read, or that well-worn seat where we wrap ourselves in a blanket and binge watch our favorite show. We have our routines. Each family settles into their "normal" busy lives. We get very comfortable there, don't we? There is a sense in which we think that other people's lives look much the same....or maybe we don't think of their lives at all.



I have noticed the defensive posture many of us take on social media (a posture we may not be so bold in maintaining if we were face to face). Someone calls mask-wearers sheep, or non-mask-wearers are heartless people who don't care if they infect others. It is hard not to put up your shield when approached in such a strong way. We may feel the posts on racism don't include us. Our comfortable live is shaken thinking about some of these issues. And it should be!

If our first thought on any issue is to indignantly reply, "Not me!" instead of taking a close and honest look at our lives and hearts, we have chosen a prideful and dangerous response. I have learned so much about the virus, studied medical journals, read peer-reviewed studies, learned about COVID-19 as the doctors around the world are learning about it. I have also read YOUR posts, both sides of the debate, and then I have tried to form my own (hopefully wise) opinions. BUT I hold that all loosely! So much is still unknown about this new virus. I cannot dogmatically hold firm to what I believed 2 months ago, because new information is coming in that changes that. I must be willing to learn and change also.

The same is true of the recent talks of racism and the Black Lives Matter movement. I have learned more in the last few weeks about black history, reading personal stories from people of color, and have more fully realized that all of our experiences are NOT the same. We do not all have the comfortable suburban life. We do not all have the same struggles or opportunities. I do not think all white people are racist. I do think all people of all colors need to be willing to learn and listen. If someone accuses you of being a racist, I understand the tendency to assume the defensive posture. No one thinks of themselves as a bigot, but we do all have biases. We all have difference experiences/backgrounds which shape our worldview. We must begin to understand that our lives, in fact, do NOT all look the same on a day to day basis.

This hasn't been on the news much if at all, but there have definitely been other forms of discrimination made clear to me these past few months as well. Ageism and Ableism.

Ageism: "Ageism is the stereotyping and discrimination of individuals or groups on the basis of their age; ageism can take many forms, including prejudicial attitudes, discriminatory practices or institutional policies that perpetuate stereotypical beliefs." (source World Health Organization)

Ableism: "Ableism is the discrimination of and social prejudice against people with disabilities based on the belief that typical abilities are superior. At its heart, ableism is rooted in the assumption that people require 'fixing' and defines people by their disability. Like racist and sexism, ableism classifies entire groups of people as 'less than,' and includes harmful stereotypes, misconceptions, and generalizations of people with disabilities."
(source accessliving.org)

I am saddened to see how hard hit nursing homes and group homes for individuals with disabilities have been hit. To be clear, these are not the expensive, private homes that you may see in the upper-middle class neighborhoods. These are the state and federally funded homes that Medicare covers. Places like my grandmother lived. I remember the horrible smell, and the patients left sitting alone in the hallway. Others wandering around half dressed, and seemingly uncared for. We only went to visit her a few times. Our society doesn't place a whole lot of value on the "old" or the "infirmed". If you can't contribute or produce, you don't have much value. That may seem harsh, maybe you feel that impulse to assume a defensive stance. You may not feel that way about your own mother, but that doesn't mean you aren't ageist, much the same as having a black friend doesn't mean you aren't racist. 

People with disabilities are an often overlooked and neglected group as well. Homes like I mentioned above are frequently places of abuse. The National Institutes of Health estimates 1 in 10 are abused in settings like this. Are you aware of this? Recently a man who was living in a care home like this was allowed to die of COVID without treatment, because doctors deemed his quality of life not worth saving.

I have personally experienced ableism (and sexism, but that is a story for a different day!). The ableist says things like: "Such a shame, you're too young to be stuck in that chair" or "I would want to kill myself if I had to deal with what you are going through." (real life examples)

Sometimes it is blatantly obvious, other times it is more subtle. Maybe just a superior attitude of "I can do it better/easier" or condescending "you poor thing." People talk to me like I am 3 years old sometimes, "Look at you, doing that all by yourself." It is more than just words, but again, a systemic problem. Society as a whole does not give any thought to people who are not the same as them. In this case, not the color of my skin, but the ability of my body. Could be missing limbs, or paralysis. Might be a developmental issue or genetic disease that cause you to move, act, speak differently or not at all. Maybe you are deaf or hard of hearing. The world around us is built by and for people who look and move a certain way....."normal."

I have not counted, but conservatively half of the places I go have accessibility issues. Even places that have been made by laws to add an accessible bathroom, block the hallway with chairs or boxes. The worst is all the hospitals and doctors that have step-on garbage cans in the accessible bathroom (I have mentioned this issue before). Recently I had a test done at a local hospital and the bathroom in the room had the handicapped accessible plaque. Unfortunately, it was an old surgical room turned into the testing site, and the sink only had step-on (foot controlled) water. I can stand, but am not stable. Just trying to balance on one foot to step on something to wash my hands is very difficult, and puts me at risk for falling. Others may not have use of their legs, and would be unable to clean up after using the bathroom. I came out after my ordeal, and mentioned to the tech about the foot pedals not being accessible, and they should fix the bathroom to be ADA compliant or removed their sign. Her response is an example of ableism. 

She replied, "It has a grab bar, so that makes it accessible."

Me, "No, much more is needed for a bathroom to be accessible. If I have no use of my legs, how do I wash my hands?"

She thought for a minute and said, "Maybe the person who hung the sign didn't think about someone having legs that don't work, do you think that's it?"

me *blink* *blink* "Yeah, I think that's it."

This seems like a battle I can't win. Maybe you think that ignorance doesn't mean you are ableist. Maybe you are right. Maybe you are wrong. My main point about all of this is that we don't need to attend a white nationalist rally to be racist, or knock little old ladies down in the street to ageist. We need to open our eyes to see the differences around us (color/race, age, sex, ability, etc.), acknowledge and honor those differences. Recognize that when you say "all lives matter" it doesn't excuse ignorance of the situation. All people's lives do matter. Absolutely! And because they do, they are worth our time to get to know, to learn about their struggles, to love, and to treat like a fellow human being. Stop using terms like "us" and "them" and start seeing all of us and "we."

So far, 2020 has been the perfect storm in a sense. Isolation during the shutdown. Perhaps fear of the virus, or for loss of liberty. The nation watched George Floyd being killed, and the desire for justice gave way to protests and riots. We all want to be heard and seen. Take some time to learn about people that are different from you, if all our lives matter.

It is so easy to stay in our comfortable corners of the world, and pay little attention to things that don't impact us. Lately I feel shaken, broken even. There is SO much injustice, so much passing the blame, so little self-reflection. 

So, I pray. 

I pray for myself. May my eyes continued to be open, and may God show me how to contribute in a meaningful way. May He continue to guard my tongue, helping me to respond in love to people who show me ableist attitudes. I pray He helps me to truly see and hear the people created in His image; to love them as He loved me.

I pray for all of you also. May each of you set down your shield, and be willing to read things from the other person's perspective. May we all compare these things to God's word, being willing to grow, change, and repent in areas where needed. May we seek to reconcile and love those across the divide. 

I pray for the US, that we might not just go back to our comfortable pre-pandemic lives, and forget all that 2020 has revealed to us. May God be glorified in our lives, and throughout the world!

Until Next Time~
Shari